APOA SURVEY ON CANCER COMMUNICATION - Informed Consent
My name is Dr. David Lounsbury. I am from the Albert Einstein College of Medicine, New York, USA. I am working with Dr. Melissa Henry from McGill University's Faculty of Medicine (Co-Principal Investigator) and with other investigators to conduct a survey to learn about current programs, practices and policies regarding breaking bad news including delivery of a cancer diagnosis. This study is conducted in collaboration with the African Organization for Research and Training in Cancer (AORTIC) and the Association for Psycho-Oncology in Africa (APOA).
As a physician or nurse who delivers care to cancer patients in an African hospital or clinic, you are being invited to participate in this brief on-line (digital) survey. The survey takes approximately 15 minutes to complete. Your participation may help inform the development of guidance guidelines to oncology providers on how to improve upon current methods of delivering a cancer diagnosis and other bad news to patients and family members in your institution.
Your participation is voluntary. You do not have to participate; it is your choice. Completing the survey will indicate your consent to participate. You may be uncomfortable answering some questions. You do not have to answer all the questions and you may stop at any time.
A risk of taking part in this study is the possibility of a loss of confidentiality or privacy. Loss of privacy means having your personal information shared with someone who is not on the study team and was not supposed to see or know about your information. The study team plans to protect your privacy, and no risks or discomforts are anticipated from taking part in this study. If you feel uncomfortable with a question, you can skip that question or stop taking the survey altogether. If you decide to quit at any time before you have finished the survey, your answers will not be retained. We will not pay you to join this study.
Information from this study may be used in future research studies by our study team. Data from this study may also be shared with other researchers (without links to your identity) for future research studies.
If you have any questions or problems with this study, or if you change your mind and don’t want your information used for the study anymore, you can call or e-mail me, the person in charge of this study: Dr. David Lounsbury (phone: +1.718.839.7452; e-mail David.Lounsbury@einstein.yu.edu), Co-Principal Investigator for this study. Or, you can call Einstein Institutional Review Board at +1.718.430.2253. They will let you know how to write to the Principal Investigator to let him know you want to stop participating. Just remember, if we have already used your information for the study, the use of that information cannot be cancelled.
Thank you for your valuable time in participating in this very important study.
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